Diet and Health FAQ

Tagged As: What Is Colitis

Question:
My mother has been recently diagnosed with a rare form of colitis called collagenous colitis. Has anyone ever dealt with this?Do you know of any sources of information?

Answer:
The pepto regiment is either 8 or 12 pepto bismals for 12 weeks They also find that 99 % of those with CC/MC has some form of celiac disease feel free to email me if you want if you have any questions ... I am currently in remission and off all meds except a occasional Colestid Maryjo - CC class of '98 Here are a group of very helpful web sites that have information about inflammatory bowel disease. 

These four in particular have information on collagenous colitis.  http://community-2.webtv.net/MaryjoL/MYPAGE/ Collagenous Colitis FAQ (Frequently Asked Questions) http://qurlyjoe.bu.edu/cducibs/colcolfaq.html MC/CC Home Page. (MC=Microscopic Colitis, CC=Collagenous Colitis) Different names for the same thing, also called Lymphotic Colitis. http://www.malinowski.com/colitis.htm Marilyn's Home Page. http://www.geocities.com/HotSprings/Villa/2534/ (The first couple of these are also listed below. But I grouped these here for convenience.)

These are all excellent sources of information, and excellent starting points in your search for answers. (Most of them have many additional 'Links'.) Crohn's & Colitis Foundation of America (CCFA) http://www.ccfa.org/ (click on 'Medical Central' to get to the 'Library' which has information on 'Medications' as well as many other topics.) (click on 'Chapters & Events' to locate a support group near you - if you live in the United States.) (I know there are also support groups in Canada - from the CCFC site. And
I believe there are also support groups that can be found from the UK site and the Australian site.) (click on 'Links' to find one of the largest collection of links to medical pages, as well as Crohn's & Colitis pages.) Crohn's and Colitis Foundation of Canada (CCFC) (in English & French) http://www.ccfc.ca/ (click on the 'Index' {was near the upper left side of the page, after you chose English or French} to get an overview of the information available on this site.) National Association for Colitis and Crohn's Disease (NACC) http://www.nacc.org.uk/ (This is the National Association for Colitis and Crohn's Disease in the United Kingdom.) Australian Crohn's and Colitis Association (ACCA) http://www.acca.net.au/ (There are separate sites for 'Queensland' and 'South Australia' and for a Support Group in New Zealand. These are found on the 'Links' page.)

Links for many other National Support Organizations for Crohn's and Colitis can be found on the 'Links' page of the CCFA site. Where some of these do not have a web site, addresses and telephone numbers, along with e-mail addresses (when available) are also listed there. 'Living With Ulcerative Colitis' http://www.ulcerativecolitis.com/ http://www.living-better.com/index.html ?(The US site.) http://www.canada.living-better.com/index.html ? (The Canadian site.)

I am also going to mention this program. I managed to find them and joined this information program before I got on the internet. I found this program to be very helpful. This free information program is sponsored by 'Proctor & Gamble' and by 'Proctor & Gamble Canada.' There is an initial Information Packet, followed by a quarterly newsletter. The information on the web pages is useful even if you do not qualify for the information program. Some of the articles from the newsletter are archived on the US site. Here are the restrictions for the 'Living With Ulcerative Colitis' information program. You must live in the United States or Canada, and have Ulcerative Colitis.

If you live in Canada, you must be taking Asacol to qualify for it. (At least this is my understanding of the restrictions.) There are several lists of 'Frequently Asked Questions' (FAQ) about Crohn's and Colitis. They are usually posted on use net every couple weeks. These are several links to them. Inflamatory Bowel Disease, Frequently Asked Questions, Version 3.1 http://ibdfaq.freeshell.org/ Bill Robertson's Inflammatory Bowel Disease Pages. http://qurlyjoe.bu.edu/cduchome.html The page with FAQ's here also lists an FAQ for 'Information Resources' for IBD (Inflammatory Bowel Disease), and FAQ for 'Collagenous Colitis', and an FAQ for IBS (Irritable Bowel Syndrome). There are a multitude of links from this home page as well. 'Collagenous Colitis' (also called 'Microscopic Colitis' or 'Lymphocytic Colitis') is also one of the forms of IBD Inflammatory Bowel Disease) along with the more commonly known 'Crohn's Disease' and 'Ulcerative Colitis.' It was only recently discovered, and gets its name from the fact that the inflammation is not visible, but can only be detected under a microscope.